[Felvtalk] My Location...should you find an open minded vet...

Margo toomanykitties2 at earthlink.net
Mon Dec 26 05:54:49 CST 2016



Robert, I saw that you are dealing with a non-regenerative anemia. Isn't that the only use for epo/aranesp? But I only know of it being used when kidney failure has been considered the cause. 

Do you think it would be useful in your situation?

Margo



-----Original Message-----
>From: ROBERT CHAPEL <bchapel at optonline.net>
>Sent: Dec 25, 2016 2:32 PM
>To: felvtalk at felineleukemia.org
>Cc: felvtalk at felineleukemia.org
>Subject: Re: [Felvtalk] My Location...should you find an open minded vet...
>
>Thank you Amani and Ardy for thinking of me....   I am located in a part 
>of NYS called Southern Orange County... The largest nearby towns are 
>Middletown, Monroe,Newburgh but I'd be willing to travel a distance for 
>a chance at a real result ( eg.... The Vet Opthalmologist I am using is 
>50 miles away)... NYC is 60 miles from me.     Problem is that soon my 
>time availability is going to be compromised by my need to return to 
>work in order to afford the basics of life.....  I know for some a few 
>thousand dollars is not much but for me in retirement it comprises a 
>very large portion of my living expenses for a few months.... ( I 
>do...after all, have a couple of needs of my own as well....such as food 
>and gas and a mortgage to pay  : )
>Any assistance you could lend would be well appreciated....   I've done 
>more than a bit of asking around but am not well connected enough in 
>this "other" medical world yet to have confidence that I won't be 
>wasting still more money to hear crap that I already know 10 times 
>over.....  Kind of the same conundrum as my going to a new MD for a drug 
>I've been on for 40 years.... He knows nothing about it but I need HIS 
>sig to  get it and until he knows me he's not going to trust that I know 
>what I'm talking about... or if he's really full of himself may not take 
>the time to listen to whether I even do.... It's THAT kind of money 
>wasting I am no longer willing to do.... Please forgive the building 
>frustration but being held captive by someones prescription pad while 
>their brain is too closed to allow me a chance at saving my little boy 
>is REALLY working on me....    Winstrol,Doxy and Pred in combo don't 
>come near the price of one Bone Marrow aspiration and are a heck of a 
>lot cheaper than Epopoieten which is of little use in a non regenerative 
>anemia.... Don't tell me there's nothing tha you CAN do when it's 
>actually that there is nothing that you WILL do..... Ok... I'll stop
>
>On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-request at felineleukemia.org 
>wrote:
>
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>> Today's Topics:
>>
>>    1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley)
>>    2. Re: FelV kitten (Amani Oakley)
>>    3. Aloe Acemannan (Tina Terrell)
>>    4. Re: FelV kitten (Margo)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Sun, 25 Dec 2016 05:18:21 +0000
>> From: Amani Oakley To: "felvtalk at felineleukemia.org" Subject: Re: 
>> [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
>> Message-ID:
>> 	
>> Content-Type: text/plain; charset="utf-8"
>>
>> Bob
>>
>> At 14 haematocrit, you've got a ways to go before your boy is in 
>> crisis. I know you have tried everything Bob, and you are struggling 
>> with costs, but if you could find a vet to prescribe the drug 
>> combination we have discussed, would you do it? It isn?t all that 
>> expensive really. If you tell me or Ardy directly , where you are 
>> located, we can try to find a vet through Diamond Back compounding 
>> pharmacy. I know how attached you are to your little boy, and frankly, 
>> if he is still eating, I wouldn?t give up on him yet.
>>
>> Amani
>>
>> -----Original Message-----
>> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf 
>> Of ROBERT CHAPEL
>> Sent: December-24-16 2:54 PM
>> To: felvtalk at felineleukemia.org
>> Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
>>
>> Amani et al....
>>
>> Any idea of the life expectancy of untreated non regenerative anemia 
>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the 
>> vet states HCT of 14 and non regenerative anemia....? I was taken 
>> aback and didn't ask nearly enough questions but it was VERY clear 
>> that she felt it was time to put the little guy down.....?? I am at 
>> the end of my money at this point and cannot take him to a bunch of 
>> other vets hoping one will be willing to prescribe the cocktail that 
>> is showing itself to be effective with others cats...( I don't think I 
>> am going to get a lot of cooperation from the Vet I was using after I 
>> gave her my opinion of her unwillingness to help me through 
>> unconventional means).....Nor can I afford Bone Marrow Biopsies and 
>> more definitive narrowing of the parameters of his drop in blood 
>> values ( it's Xmas eve and they are all gone from the office)....?? As 
>> much as I would like to save this little guy... He has so many other 
>> things wrong with him that I don't know that I a
>>  m doing him any favors..... Temp is 104...weight has dropped a full 
>> pound in the last 6 months.... If it weren't for the fact that he is 
>> still eating heartily I'd put him down.... Without further treatment 
>> is it kinder to put him down or allow nature to take it's 
>> course??.....The idea of him suffering from an inability to get enough 
>> O2 is unacceptable....
>> any suggestions are welcome.... but... please...? no admonitions re: 
>> what I _ should_ do.....??? I have learned an immense amount from this 
>> experience and will NOT repeat it...? My other boy is still doing OK 
>> and I WILL find someone eventually that is willing to work with me..
>>
>>
>>
>> On Sat, Dec 24, 2016 at 01:00 PM, felvtalk-request at felineleukemia.org
>> wrote:
>>
>>> Send Felvtalk mailing list submissions to
>>> 	felvtalk at felineleukemia.org
>>>
>>> To subscribe or unsubscribe via the World Wide Web, visit
>>> 	 
>>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>>>
>>> or, via email, send a message with subject or body 'help' to
>>> 	felvtalk-request at felineleukemia.org
>>>
>>> You can reach the person managing the list at
>>> 	felvtalk-owner at felineleukemia.org
>>>
>>> When replying, please edit your Subject line so it is more specific 
>>> than "Re: Contents of Felvtalk digest..."
>>>
>>>
>>> Today's Topics:
>>>
>>>    1. FW:  FW: Questioning FELV diagnosis (Amani Oakley)
>>>
>>>
>>> 
>>> ----------------------------------------------------------------------
>>>
>>> Message: 1
>>> Date: Fri, 23 Dec 2016 18:16:02 +0000
>>> From: Amani Oakley To: "felvtalk at felineleukemia.org" Subject: 
>>> [Felvtalk] FW:  FW: Questioning FELV diagnosis
>>> Message-ID:
>>> 	
>>> Content-Type: text/plain; charset="utf-8"
>>>
>>> Randy
>>>
>>> The news is good. Whatever works. I am a big believer in keeping 
>>> close tabs on the bloodwork and adjusting the medication, depending 
>>> on what the lab results show.
>>>
>>> Given that Curley is eating and you are getting an improvement on the 
>>> red cells already, I agree that the Winstrol and Doxy should help 
>>> even more. Keep track of the blood work and adjust accordingly.
>>>
>>> Amani
>>>
>>> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf 
>>> Of Randy Henke
>>> Sent: December-23-16 11:02 AM
>>> To: felvtalk at felineleukemia.org
>>> Subject: Re: [Felvtalk] FW: Questioning FELV diagnosis
>>>
>>> The situation with Curly is getting a bit more complicated but in a 
>>> good way. Her blood work a week ago showed an RBC of 9 which is 
>>> critically low. White cell count was 3.1. After one week of 
>>> Prednisone her white cell count is 3.7 which is the low end of normal 
>>> and her red blood cell count is up to 13 which is still very low but 
>>> a very significant increase in just one week. So the Prednisone alone 
>>> is making a big difference. We've now had two positive ELISA tests, a 
>>> negative IFA and severe anemia that is responding well to just 
>>> Prednisone. I am very confused. Even our vet seems surprised by the 
>>> sudden improvement in her numbers. He thinks we should do a bone 
>>> marrow biopsy for a definitive FELV diagnosis but I don't really want 
>>> to put her through that procedure.
>>> We did start the Winstrol a day ago so I would think that could only 
>>> help more. We should be tapering down the Prednisone dose at this 
>>> time but our vet now wants to continue the full dosage for another 
>>> two weeks before running another CBC. And the Doxy will be started on 
>>> Monday. I'm beginning to think she might pull out of this crisis and 
>>> we might have a little more time with her.
>>>
>>> On Tue, Dec 20, 2016 at 9:46 PM, Ardy Robertson > wrote:
>>> Best of luck to you with Curly ---- just wanted to mention there are 
>>> appetite stimulant pills available. One that I remember that I used 
>>> with Tigger was Mirtazapine and I only had to give a small part of a 
>>> pill every 3 days. Amani knows of another one but I can?t remember 
>>> the name of it.
>>>
>>> Ardy
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>>> ------------------------------
>>>
>>> End of Felvtalk Digest, Vol 32, Issue 58
>>> ****************************************
>>>
>>
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>> ------------------------------
>>
>> Message: 2
>> Date: Sun, 25 Dec 2016 05:20:28 +0000
>> From: Amani Oakley To: "felinerescue at frontier.com" ,
>> 	"felvtalk at felineleukemia.org" Subject: Re: [Felvtalk] FelV kitten
>> Message-ID:
>> 	
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> Frankly, it is not too late at all for the Winstrol. I have seen it 
>> pull back cats with a much much lower haematocrit than Robert is 
>> seeing.
>>
>> Amani
>>
>> -----Original Message-----
>> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf 
>> Of Lorrie
>> Sent: December-24-16 5:49 PM
>> To: felvtalk at felineleukemia.org
>> Subject: [Felvtalk] FelV kitten
>>
>> Robert,  I am so sorry you are going thru this. I have lost many 
>> kittens who were born with the virus, which they got from their mother 
>> who was feral. All these precious kittens died at less than a year. 
>> At first they were so playful and looked so healthy I thought the two 
>> tests I'd had were surely wrong, but at 8 months I started to lose 
>> them one by one.  The 4th and last (my favorite) made it to 11 months. 
>> I was devastated.
>>
>> On the other hand I have had several older cats at my sanctuary who 
>> must have contracted the virus when older.  One died suddenly at 7 
>> years old and the other is now 8 years old, and she has never been 
>> sick. You never know what will happen.
>> If you had started your little guy on Winstrol a few weeks ago it 
>> might have saved his life, but it is probably too late now.
>> I just wanted to tell you I am so sorry, and I know what you are going 
>> thru.
>>
>> Lorrie with 13 rescued cats at home and 32 in my sanctuary.
>>
>>
>> On 12-24, ROBERT CHAPEL wrote:
>>> Amani et al....
>>>
>>> Any idea of the life expectancy of untreated non regenerative anemia 
>>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the 
>>> vet states HCT of 14 and non regenerative anemia....? I was taken 
>>> aback and didn't ask nearly enough questions but it was VERY clear 
>>> that she felt it was time to put the little guy down.....?? I am at 
>>> the end of my money at this point and cannot take him to a bunch of 
>>> other vets hoping one will be willing to prescribe the cocktail that 
>>> is showing itself to be effective with others cats...( I don't think 
>>> I am going to get a lot of cooperation from the Vet I was using after 
>>> I gave her my opinion of her unwillingness to help me through 
>>> unconventional means).....Nor can I afford Bone Marrow Biopsies and 
>>> more definitive narrowing of the parameters of his drop in blood 
>>> values ( it's Xmas eve and they are all gone from the office)....?? 
>>> As much as I would like to save this little guy... He has so many 
>>> other things wrong with him that I don't know that I am doing him any 
>>> favors..... Temp is 104...weight has dropped a full pound in the last 
>>> 6 months.... If it weren't for the fact that he is still eating 
>>> heartily I'd put him down.... Without further treatment is it kinder 
>>> to put him down or allow nature to take it's course??.....The idea of 
>>> him suffering from an inability to get enough O2 is unacceptable....
>>> any suggestions are welcome.... but... please...? no admonitions re: 
>>> what I _ should_ do.....??? I have learned an immense amount from 
>>> this experience and will NOT repeat it...? My other boy is still 
>>> doing OK and I WILL find someone eventually that is willing to work 
>>> with me..
>>>
>>
>> _______________________________________________
>> Felvtalk mailing list
>> Felvtalk at felineleukemia.org
>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>>
>>
>>
>> ------------------------------
>>
>> Message: 3
>> Date: Sun, 25 Dec 2016 07:14:03 -0600
>> From: Tina Terrell To: felvtalk at felineleukemia.org
>> Subject: [Felvtalk] Aloe Acemannan
>> Message-ID:
>> 	
>> Content-Type: text/plain; charset="utf-8"
>>
>> Hello and Merry Christmas.  I am in need of finding freeze dried 
>> acemannan.
>> They have discontinued and it is helping my Charlie leaps and bounds. 
>> He
>> has been off of it for 2 weeks and now he is sick with uri. Is steroid 
>> and
>> antibiotic typical protocol?  Thanks in advance!
>> Tina Terrell
>> -------------- next part --------------
>> An HTML attachment was scrubbed...
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>>
>> Message: 4
>> Date: Sun, 25 Dec 2016 08:23:39 -0500 (EST)
>> From: Margo To: felinerescue at frontier.com, felvtalk at felineleukemia.org
>> Subject: Re: [Felvtalk] FelV kitten
>> Message-ID:
>> 	<10437073.471.1482672219556 at elwamui-muscovy.atl.sa.earthlink.net>
>> Content-Type: text/plain; charset=UTF-8
>>
>>
>>  Lorrie wrote "If you had started your little guy on Winstrol a few 
>> weeks ago it
>> might have saved his life, but it is probably too late now."
>>
>> And it might have done nothing. Th young ones seem to have little in 
>> reserve to let them fight the disease. No point in second-guessing 
>> what might have been, it can only be hurtful. If you can't find a Vet 
>> that will cooperate, there's not much that can be done by a 
>> lay-person, except to love them and do the best you can with what you 
>> have available.
>>
>> Margo
>>
>>
>> -----Original Message-----
>>> From: Lorrie Sent: Dec 24, 2016 5:49 PM
>>> To: felvtalk at felineleukemia.org
>>> Subject: [Felvtalk] FelV kitten
>>>
>>> Robert,  I am so sorry you are going thru this. I have lost many
>>> kittens who were born with the virus, which they got from their
>>> mother who was feral. All these precious kittens died at less than a
>>> year.  At first they were so playful and looked so healthy I thought
>>> the two tests I'd had were surely wrong, but at 8 months I started to
>>> lose them one by one.  The 4th and last (my favorite) made it to 11
>>> months.  I was devastated.
>>>
>>> On the other hand I have had several older cats at my sanctuary who 
>>> must have contracted the virus when older.  One died suddenly at 7 
>>> years
>>> old and the other is now 8 years old, and she has never been sick. 
>>> You never know what will happen.
>>> If you had started your little guy on Winstrol a few weeks ago it
>>> might have saved his life, but it is probably too late now.
>>> I just wanted to tell you I am so sorry, and I know what you are
>>> going thru.
>>>
>>> Lorrie with 13 rescued cats at home and 32 in my sanctuary.
>>>
>>>
>>> On 12-24, ROBERT CHAPEL wrote:
>>>> Amani et al....
>>>>
>>>> Any idea of the life expectancy of untreated non regenerative anemia 
>>>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the 
>>>> vet states HCT of 14 and non regenerative anemia....? I was taken 
>>>> aback and didn't ask nearly enough questions but it was VERY clear 
>>>> that she felt it was time to put the little guy down.....?? I am at 
>>>> the end of my money at this point and cannot take him to a bunch of 
>>>> other vets hoping one will be willing to prescribe the cocktail that 
>>>> is showing itself to be effective with others cats...( I don't think 
>>>> I am going to get a lot of cooperation from the Vet I was using 
>>>> after I gave her my opinion of her unwillingness to help me through 
>>>> unconventional means).....Nor can I afford Bone Marrow Biopsies and 
>>>> more definitive narrowing of the parameters of his drop in blood 
>>>> values ( it's Xmas eve and they are all gone from the office)....?? 
>>>> As much as I would like to save this little guy... He has so many 
>>>> other things wrong with him that I don't know that I am doing him 
>>>> any favors..... Temp is 104...weight has dropped a full pound in the 
>>>> last 6 months.... If it weren't for the fact that he is still eating 
>>>> heartily I'd put him down.... Without further treatment is it kinder 
>>>> to put him down or allow nature to take it's course??.....The idea 
>>>> of him suffering from an inability to get enough O2 is 
>>>> unacceptable....
>>>> any suggestions are welcome.... but... please...? no admonitions re: 
>>>> what I _ should_ do.....??? I have learned an immense amount from 
>>>> this experience and will NOT repeat it...? My other boy is still 
>>>> doing OK and I WILL find someone eventually that is willing to work 
>>>> with me..
>>>>
>>>
>>> _______________________________________________
>>> Felvtalk mailing list
>>> Felvtalk at felineleukemia.org
>>> 
>>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>>
>>
>>
>> ------------------------------
>>
>> Subject: Digest Footer
>>
>> _______________________________________________
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>> Felvtalk at felineleukemia.org
>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>>
>>
>> ------------------------------
>>
>> End of Felvtalk Digest, Vol 32, Issue 60
>> ****************************************
>>
>
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