[Felvtalk] My Location...should you find an open minded vet...
ROBERT CHAPEL
bchapel at optonline.net
Sun Dec 25 13:32:52 CST 2016
Thank you Amani and Ardy for thinking of me.... I am located in a part
of NYS called Southern Orange County... The largest nearby towns are
Middletown, Monroe,Newburgh but I'd be willing to travel a distance for
a chance at a real result ( eg.... The Vet Opthalmologist I am using is
50 miles away)... NYC is 60 miles from me. Problem is that soon my
time availability is going to be compromised by my need to return to
work in order to afford the basics of life..... I know for some a few
thousand dollars is not much but for me in retirement it comprises a
very large portion of my living expenses for a few months.... ( I
do...after all, have a couple of needs of my own as well....such as food
and gas and a mortgage to pay : )
Any assistance you could lend would be well appreciated.... I've done
more than a bit of asking around but am not well connected enough in
this "other" medical world yet to have confidence that I won't be
wasting still more money to hear crap that I already know 10 times
over..... Kind of the same conundrum as my going to a new MD for a drug
I've been on for 40 years.... He knows nothing about it but I need HIS
sig to get it and until he knows me he's not going to trust that I know
what I'm talking about... or if he's really full of himself may not take
the time to listen to whether I even do.... It's THAT kind of money
wasting I am no longer willing to do.... Please forgive the building
frustration but being held captive by someones prescription pad while
their brain is too closed to allow me a chance at saving my little boy
is REALLY working on me.... Winstrol,Doxy and Pred in combo don't
come near the price of one Bone Marrow aspiration and are a heck of a
lot cheaper than Epopoieten which is of little use in a non regenerative
anemia.... Don't tell me there's nothing tha you CAN do when it's
actually that there is nothing that you WILL do..... Ok... I'll stop
On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-request at felineleukemia.org
wrote:
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> 1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley)
> 2. Re: FelV kitten (Amani Oakley)
> 3. Aloe Acemannan (Tina Terrell)
> 4. Re: FelV kitten (Margo)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Sun, 25 Dec 2016 05:18:21 +0000
> From: Amani Oakley To: "felvtalk at felineleukemia.org" Subject: Re:
> [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
> Message-ID:
>
> Content-Type: text/plain; charset="utf-8"
>
> Bob
>
> At 14 haematocrit, you've got a ways to go before your boy is in
> crisis. I know you have tried everything Bob, and you are struggling
> with costs, but if you could find a vet to prescribe the drug
> combination we have discussed, would you do it? It isn?t all that
> expensive really. If you tell me or Ardy directly , where you are
> located, we can try to find a vet through Diamond Back compounding
> pharmacy. I know how attached you are to your little boy, and frankly,
> if he is still eating, I wouldn?t give up on him yet.
>
> Amani
>
> -----Original Message-----
> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf
> Of ROBERT CHAPEL
> Sent: December-24-16 2:54 PM
> To: felvtalk at felineleukemia.org
> Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58
>
> Amani et al....
>
> Any idea of the life expectancy of untreated non regenerative anemia
> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the
> vet states HCT of 14 and non regenerative anemia....? I was taken
> aback and didn't ask nearly enough questions but it was VERY clear
> that she felt it was time to put the little guy down.....?? I am at
> the end of my money at this point and cannot take him to a bunch of
> other vets hoping one will be willing to prescribe the cocktail that
> is showing itself to be effective with others cats...( I don't think I
> am going to get a lot of cooperation from the Vet I was using after I
> gave her my opinion of her unwillingness to help me through
> unconventional means).....Nor can I afford Bone Marrow Biopsies and
> more definitive narrowing of the parameters of his drop in blood
> values ( it's Xmas eve and they are all gone from the office)....?? As
> much as I would like to save this little guy... He has so many other
> things wrong with him that I don't know that I a
> m doing him any favors..... Temp is 104...weight has dropped a full
> pound in the last 6 months.... If it weren't for the fact that he is
> still eating heartily I'd put him down.... Without further treatment
> is it kinder to put him down or allow nature to take it's
> course??.....The idea of him suffering from an inability to get enough
> O2 is unacceptable....
> any suggestions are welcome.... but... please...? no admonitions re:
> what I _ should_ do.....??? I have learned an immense amount from this
> experience and will NOT repeat it...? My other boy is still doing OK
> and I WILL find someone eventually that is willing to work with me..
>
>
>
> On Sat, Dec 24, 2016 at 01:00 PM, felvtalk-request at felineleukemia.org
> wrote:
>
>> Send Felvtalk mailing list submissions to
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>> or, via email, send a message with subject or body 'help' to
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>>
>> Today's Topics:
>>
>> 1. FW: FW: Questioning FELV diagnosis (Amani Oakley)
>>
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Fri, 23 Dec 2016 18:16:02 +0000
>> From: Amani Oakley To: "felvtalk at felineleukemia.org" Subject:
>> [Felvtalk] FW: FW: Questioning FELV diagnosis
>> Message-ID:
>>
>> Content-Type: text/plain; charset="utf-8"
>>
>> Randy
>>
>> The news is good. Whatever works. I am a big believer in keeping
>> close tabs on the bloodwork and adjusting the medication, depending
>> on what the lab results show.
>>
>> Given that Curley is eating and you are getting an improvement on the
>> red cells already, I agree that the Winstrol and Doxy should help
>> even more. Keep track of the blood work and adjust accordingly.
>>
>> Amani
>>
>> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf
>> Of Randy Henke
>> Sent: December-23-16 11:02 AM
>> To: felvtalk at felineleukemia.org
>> Subject: Re: [Felvtalk] FW: Questioning FELV diagnosis
>>
>> The situation with Curly is getting a bit more complicated but in a
>> good way. Her blood work a week ago showed an RBC of 9 which is
>> critically low. White cell count was 3.1. After one week of
>> Prednisone her white cell count is 3.7 which is the low end of normal
>> and her red blood cell count is up to 13 which is still very low but
>> a very significant increase in just one week. So the Prednisone alone
>> is making a big difference. We've now had two positive ELISA tests, a
>> negative IFA and severe anemia that is responding well to just
>> Prednisone. I am very confused. Even our vet seems surprised by the
>> sudden improvement in her numbers. He thinks we should do a bone
>> marrow biopsy for a definitive FELV diagnosis but I don't really want
>> to put her through that procedure.
>> We did start the Winstrol a day ago so I would think that could only
>> help more. We should be tapering down the Prednisone dose at this
>> time but our vet now wants to continue the full dosage for another
>> two weeks before running another CBC. And the Doxy will be started on
>> Monday. I'm beginning to think she might pull out of this crisis and
>> we might have a little more time with her.
>>
>> On Tue, Dec 20, 2016 at 9:46 PM, Ardy Robertson > wrote:
>> Best of luck to you with Curly ---- just wanted to mention there are
>> appetite stimulant pills available. One that I remember that I used
>> with Tigger was Mirtazapine and I only had to give a small part of a
>> pill every 3 days. Amani knows of another one but I can?t remember
>> the name of it.
>>
>> Ardy
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>> End of Felvtalk Digest, Vol 32, Issue 58
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>
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> ------------------------------
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> Message: 2
> Date: Sun, 25 Dec 2016 05:20:28 +0000
> From: Amani Oakley To: "felinerescue at frontier.com" ,
> "felvtalk at felineleukemia.org" Subject: Re: [Felvtalk] FelV kitten
> Message-ID:
>
> Content-Type: text/plain; charset="iso-8859-1"
>
> Frankly, it is not too late at all for the Winstrol. I have seen it
> pull back cats with a much much lower haematocrit than Robert is
> seeing.
>
> Amani
>
> -----Original Message-----
> From: Felvtalk [mailto:felvtalk-bounces at felineleukemia.org] On Behalf
> Of Lorrie
> Sent: December-24-16 5:49 PM
> To: felvtalk at felineleukemia.org
> Subject: [Felvtalk] FelV kitten
>
> Robert, I am so sorry you are going thru this. I have lost many
> kittens who were born with the virus, which they got from their mother
> who was feral. All these precious kittens died at less than a year.
> At first they were so playful and looked so healthy I thought the two
> tests I'd had were surely wrong, but at 8 months I started to lose
> them one by one. The 4th and last (my favorite) made it to 11 months.
> I was devastated.
>
> On the other hand I have had several older cats at my sanctuary who
> must have contracted the virus when older. One died suddenly at 7
> years old and the other is now 8 years old, and she has never been
> sick. You never know what will happen.
> If you had started your little guy on Winstrol a few weeks ago it
> might have saved his life, but it is probably too late now.
> I just wanted to tell you I am so sorry, and I know what you are going
> thru.
>
> Lorrie with 13 rescued cats at home and 32 in my sanctuary.
>
>
> On 12-24, ROBERT CHAPEL wrote:
>> Amani et al....
>>
>> Any idea of the life expectancy of untreated non regenerative anemia
>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the
>> vet states HCT of 14 and non regenerative anemia....? I was taken
>> aback and didn't ask nearly enough questions but it was VERY clear
>> that she felt it was time to put the little guy down.....?? I am at
>> the end of my money at this point and cannot take him to a bunch of
>> other vets hoping one will be willing to prescribe the cocktail that
>> is showing itself to be effective with others cats...( I don't think
>> I am going to get a lot of cooperation from the Vet I was using after
>> I gave her my opinion of her unwillingness to help me through
>> unconventional means).....Nor can I afford Bone Marrow Biopsies and
>> more definitive narrowing of the parameters of his drop in blood
>> values ( it's Xmas eve and they are all gone from the office)....??
>> As much as I would like to save this little guy... He has so many
>> other things wrong with him that I don't know that I am doing him any
>> favors..... Temp is 104...weight has dropped a full pound in the last
>> 6 months.... If it weren't for the fact that he is still eating
>> heartily I'd put him down.... Without further treatment is it kinder
>> to put him down or allow nature to take it's course??.....The idea of
>> him suffering from an inability to get enough O2 is unacceptable....
>> any suggestions are welcome.... but... please...? no admonitions re:
>> what I _ should_ do.....??? I have learned an immense amount from
>> this experience and will NOT repeat it...? My other boy is still
>> doing OK and I WILL find someone eventually that is willing to work
>> with me..
>>
>
> _______________________________________________
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> Felvtalk at felineleukemia.org
> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>
>
>
> ------------------------------
>
> Message: 3
> Date: Sun, 25 Dec 2016 07:14:03 -0600
> From: Tina Terrell To: felvtalk at felineleukemia.org
> Subject: [Felvtalk] Aloe Acemannan
> Message-ID:
>
> Content-Type: text/plain; charset="utf-8"
>
> Hello and Merry Christmas. I am in need of finding freeze dried
> acemannan.
> They have discontinued and it is helping my Charlie leaps and bounds.
> He
> has been off of it for 2 weeks and now he is sick with uri. Is steroid
> and
> antibiotic typical protocol? Thanks in advance!
> Tina Terrell
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> Message: 4
> Date: Sun, 25 Dec 2016 08:23:39 -0500 (EST)
> From: Margo To: felinerescue at frontier.com, felvtalk at felineleukemia.org
> Subject: Re: [Felvtalk] FelV kitten
> Message-ID:
> <10437073.471.1482672219556 at elwamui-muscovy.atl.sa.earthlink.net>
> Content-Type: text/plain; charset=UTF-8
>
>
> Lorrie wrote "If you had started your little guy on Winstrol a few
> weeks ago it
> might have saved his life, but it is probably too late now."
>
> And it might have done nothing. Th young ones seem to have little in
> reserve to let them fight the disease. No point in second-guessing
> what might have been, it can only be hurtful. If you can't find a Vet
> that will cooperate, there's not much that can be done by a
> lay-person, except to love them and do the best you can with what you
> have available.
>
> Margo
>
>
> -----Original Message-----
>> From: Lorrie Sent: Dec 24, 2016 5:49 PM
>> To: felvtalk at felineleukemia.org
>> Subject: [Felvtalk] FelV kitten
>>
>> Robert, I am so sorry you are going thru this. I have lost many
>> kittens who were born with the virus, which they got from their
>> mother who was feral. All these precious kittens died at less than a
>> year. At first they were so playful and looked so healthy I thought
>> the two tests I'd had were surely wrong, but at 8 months I started to
>> lose them one by one. The 4th and last (my favorite) made it to 11
>> months. I was devastated.
>>
>> On the other hand I have had several older cats at my sanctuary who
>> must have contracted the virus when older. One died suddenly at 7
>> years
>> old and the other is now 8 years old, and she has never been sick.
>> You never know what will happen.
>> If you had started your little guy on Winstrol a few weeks ago it
>> might have saved his life, but it is probably too late now.
>> I just wanted to tell you I am so sorry, and I know what you are
>> going thru.
>>
>> Lorrie with 13 rescued cats at home and 32 in my sanctuary.
>>
>>
>> On 12-24, ROBERT CHAPEL wrote:
>>> Amani et al....
>>>
>>> Any idea of the life expectancy of untreated non regenerative anemia
>>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the
>>> vet states HCT of 14 and non regenerative anemia....? I was taken
>>> aback and didn't ask nearly enough questions but it was VERY clear
>>> that she felt it was time to put the little guy down.....?? I am at
>>> the end of my money at this point and cannot take him to a bunch of
>>> other vets hoping one will be willing to prescribe the cocktail that
>>> is showing itself to be effective with others cats...( I don't think
>>> I am going to get a lot of cooperation from the Vet I was using
>>> after I gave her my opinion of her unwillingness to help me through
>>> unconventional means).....Nor can I afford Bone Marrow Biopsies and
>>> more definitive narrowing of the parameters of his drop in blood
>>> values ( it's Xmas eve and they are all gone from the office)....??
>>> As much as I would like to save this little guy... He has so many
>>> other things wrong with him that I don't know that I am doing him
>>> any favors..... Temp is 104...weight has dropped a full pound in the
>>> last 6 months.... If it weren't for the fact that he is still eating
>>> heartily I'd put him down.... Without further treatment is it kinder
>>> to put him down or allow nature to take it's course??.....The idea
>>> of him suffering from an inability to get enough O2 is
>>> unacceptable....
>>> any suggestions are welcome.... but... please...? no admonitions re:
>>> what I _ should_ do.....??? I have learned an immense amount from
>>> this experience and will NOT repeat it...? My other boy is still
>>> doing OK and I WILL find someone eventually that is willing to work
>>> with me..
>>>
>>
>> _______________________________________________
>> Felvtalk mailing list
>> Felvtalk at felineleukemia.org
>>
>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
>
>
>
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